COVID and Scleroderma: How Are You Really Doing?

Experiences with Scleroderma During the COVID-19 Pandemic

 

A team of researchers* are conducting a study examining how the COVID–19 pandemic may be affecting the health and wellness of people with scleroderma.

Participants with scleroderma are answering questions that involve healthcare during the pandemic – how people are coping with the risk of COVID-19, how people feel about the uncertainty the pandemic can bring to their lives, what health behaviors people are engaging in (both in general and COVID related, and how people are feeling physically and mentally. Volunteers are providing valuable knowledge to health care professionals involved in the care of people with scleroderma.

The more we understand about the experience of people with scleroderma during the COVID-19 pandemic, the better able we are to respond in ways that help people stay well.

 

Direct questions to Patricia Fennell at communications@albanyhealthmanagement.com

 

* Lee Shapiro, MD (Professor of Medicine at Albany Medical College), Patricia Fennell, MSW, LCSW-R (CEO of Albany Health Management Associates), and Nancy Dorr, PhD (Professor of Psychology at the College of Saint Rose)

COVID-19 ("Coronavirus")
Information and recommendations from the Scleroderma Foundation
Medical & Scientific Advisory Board Leadership Committee

(reviewed July 1, 2020)